{"id":"cdda17da-5b1a-4ae2-88f5-6574f7f12837","feedVisibility":"search_follow_only","congress":119,"billType":"sres","billNumber":620,"title":"A resolution designating February 28, 2026, as \"Rare Disease Day\".","displayTitle":"一项将2026年2月28日指定为“罕见病日”的决议。","abstract":"本决议将2026年2月28日指定为罕见病日。","displaySummary":"<p><strong>YVN Summary</strong></p>\n\n<p>大多数人的日常生活不会有任何变化。2026年2月26日，参议院将2026年2月28日命名为罕见病日。参议院还支持三个目标：提高认知度、更早诊断，以及加强治愈方法的研究。\n\n该决议不花费任何资金。它没有向任何机构下达新指令。它不会改变任何医疗保险的承保范围。参议院指出，美国目前有超过3000万人患有罕见病。已知的罕见病超过1万种。其中约95%仍没有获得FDA批准的治疗方法。FDA是负责批准药品上市销售的机构。</p>","status":"FLOOR_CONSIDERATION","topics":[],"introducedAt":"2026-02-26T00:00:00+00:00","latestActionAt":"2026-02-26T00:00:00+00:00","congressGovUrl":"https://www.congress.gov/bill/119th-congress/senate-resolution/620","accountabilityFlags":{},"tldr":"参议院将2026年2月28日定为罕见病日——你的医疗服务和费用不会有任何变化。","summaryStandard":"v2","flagExplainers":{},"flagValence":{},"needsResummary":false,"displaySummaryHtml":null,"rawStatusText":"Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S716; text: CR S711)","chamber":"SENATE","policyArea":"Health","legislativeSubjects":["Commemorative events and holidays","Health promotion and preventive care","Medical research","Medical tests and diagnostic methods"],"lawStatus":null,"lawNumber":null,"latestActionText":"Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S716; text: CR S711)","latestTextVersion":"Agreed to Senate","textVersionUsed":"Engrossed in Senate","dateAdded":"2026-04-10T00:00:00+00:00","summarizedAt":"2026-08-20T00:00:00+00:00","recordId":"cdda17da-5b1a-4ae2-88f5-6574f7f12837","feedIdentityKey":"119/sres/620","websiteBillId":"SRES-620","yourvoiceSummary":"大多数人的日常生活不会有任何变化。2026年2月26日，参议院将2026年2月28日命名为罕见病日。参议院还支持三个目标：提高认知度、更早诊断，以及加强治愈方法的研究。\n\n该决议不花费任何资金。它没有向任何机构下达新指令。它不会改变任何医疗保险的承保范围。参议院指出，美国目前有超过3000万人患有罕见病。已知的罕见病超过1万种。其中约95%仍没有获得FDA批准的治疗方法。FDA是负责批准药品上市销售的机构。","updatedAt":"2026-10-24T12:03:25.181702+00:00"}